Autism rights movement

Autism acceptance symbol; an infinity symbol that is rainbow colored.
The rainbow-colored infinity symbol is a popular symbol among autism rights advocates. The colors symbolize the autism spectrum.[1]

The autism rights movement, also known as the autistic acceptance movement, is a social movement allied with the disability rights movement. It emphasizes the neurodiversity paradigm, viewing autism as a set of naturally occurring variations in human cognition, a disability with both strengths and weaknesses, rather than as a disease to be cured or a medical disorder.[2] This paradigm contradicts and diverges from the medical model of disability, without opposing all aspects of it.[3][4][5]

Central to the autism rights movement's beliefs is the right to self-determine if one is part of the autism community, that autistic people should be seen as the primary voice for people with autism, and that autistic people have the final say in what language should be used when talking about autism. A common motto used by the autism rights movement, borrowed from the disability rights movement, is the phrase "nothing about us without us".[6]

Autism rights movement advocates strive for widespread acceptance of people with autism, as well as the traits and behaviors (e.g. stimming, lack of eye contact, and special interests) associated with autism, for autistic people to socialize on their own terms,[7] and to mitigate the double empathy problem.[8][9] The movement seeks to reform and foster autism-oriented interventions and therapies in accordance with neurodiversity principles to emphasize coping skills for challenging situations,[10] promote adaptive skills, and promote psychological well-being and mental health, through incorporating voices and perspectives of autistic people in intervention reforms or developments.[11][12][13][14][15][16]

The movement criticizes therapies and interventions that—implicitly or explicitly—encourage masking behaviors associated with autism and imitating neurotypical social behaviors,[17][18] as higher tendencies of camouflaging, autistic masking, or passing as neurotypical are associated with worse mental health outcomes according to most recent studies and multiple systematic reviews[19][20][21] and some autistic adults who experienced some forms of behavioral interventions reported adverse effects such as detrimental effects on their mental health due to increased or excessive camouflaging or masking.[22][23][24]

The movement also advocates for people with autism to be recognized as a minority group rather than as having a disorder. Within the autism rights movement, autism is often compared to different variations in human biology not categorized as disorders, such as homosexuality.[25]

  1. ^ Muzikar, Debra (20 April 2015). "The Autism Puzzle Piece: A symbol that's going to stay or go?". The Art of Autism. Archived from the original on 1 April 2017. Retrieved 1 April 2017.
  2. ^ Solomon, Andrew (25 May 2008). "The autism rights movement". New York. Archived from the original on 27 May 2008. Retrieved 27 May 2008.
  3. ^ Dwyer, Patrick (2022). "The Neurodiversity Approach(es): What Are They and What Do They Mean for Researchers?". Human Development. 66 (2): 73–92. doi:10.1159/000523723. PMC 9261839. PMID 36158596.
  4. ^ Ne’eman, Ari; Pellicano, Elizabeth (2022). "Neurodiversity as Politics". Human Development. 66 (2): 149–157. doi:10.1159/000524277. PMC 9881465. PMID 36714278.
  5. ^ Russell, Ginny (2020). "Critiques of the Neurodiversity Movement". Autistic Community and the Neurodiversity Movement. pp. 287–303. doi:10.1007/978-981-13-8437-0_21. ISBN 978-981-13-8436-3.
  6. ^ Kapp 2020, p. 131.
  7. ^ Autism Network International presents Autreat. Archived 14 December 2001 at the Wayback Machine (23 May 2008) AIN.
  8. ^ Chapple, Melissa; Davis, Philip; Billington, Josie; Myrick, Joe Anthony; Ruddock, Cassie; Corcoran, Rhiannon (27 July 2021). "Overcoming the Double Empathy Problem Within Pairs of Autistic and Non-autistic Adults Through the Contemplation of Serious Literature". Frontiers in Psychology. 12. doi:10.3389/fpsyg.2021.708375. PMC 8354525. PMID 34385964.
  9. ^ Finke, Erinn H.; Dunn, Danny H. (23 December 2023). "Neurodiversity and double empathy: can empathy disconnects be mitigated to support autistic belonging?". Disability & Society: 1–24. doi:10.1080/09687599.2023.2295802.
  10. ^ Ratner, Paul (10 July 2016). "Should Autism Be Cured or Is "Curing" Offensive?". Big Think. Archived from the original on 16 June 2019. Retrieved 16 June 2019.
  11. ^ Leadbitter, Kathy; Buckle, Karen Leneh; Ellis, Ceri; Dekker, Martijn (12 April 2021). "Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice". Frontiers in Psychology. 12. doi:10.3389/fpsyg.2021.635690. PMC 8075160. PMID 33912110.
  12. ^ Lerner, Matthew D.; Gurba, Ava N.; Gassner, Dena L. (2023). "A framework for neurodiversity-affirming interventions for autistic individuals". Journal of Consulting and Clinical Psychology. 91 (9): 503–504. doi:10.1037/ccp0000839. PMC 10430771. PMID 37578755.
  13. ^ Pantazakos, Themistoklis; Vanaken, Gert-Jan (4 September 2023). "Addressing the autism mental health crisis: the potential of phenomenology in neurodiversity-affirming clinical practices". Frontiers in Psychology. 14. doi:10.3389/fpsyg.2023.1225152. PMC 10507173. PMID 37731874.
  14. ^ Dallman, Aaron; Williams, Kathryn; Villa, Lauren (15 April 2022). "Neurodiversity-Affirming Practices are a Moral Imperative for Occupational Therapy". The Open Journal of Occupational Therapy. 10 (2): 1–9. doi:10.15453/2168-6408.1937.
  15. ^ Cherewick, Megan; Matergia, Michael (1 September 2024). "Neurodiversity in Practice: a Conceptual Model of Autistic Strengths and Potential Mechanisms of Change to Support Positive Mental Health and Wellbeing in Autistic Children and Adolescents". Advances in Neurodevelopmental Disorders. 8 (3): 408–422. doi:10.1007/s41252-023-00348-z.
  16. ^ Dwyer, Patrick; Gurba, Ava N; Kapp, Steven K; Kilgallon, Elizabeth; Hersh, Lynnette H; Chang, David S; Rivera, Susan M; Gillespie-Lynch, Kristen (18 September 2024). "Community views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions". Autism. doi:10.1177/13623613241273029. PMID 39291753.
  17. ^ Ne'eman, Ari (July 2021). "When Disability Is Defined by Behavior, Outcome Measures Should Not Promote "Passing"". AMA Journal of Ethics. 23 (7): E569–575. doi:10.1001/amajethics.2021.569. PMC 8957386. PMID 34351268.
  18. ^ Schuck, Rachel K.; Geng, Alicia; Doss, Yvette; Lin, Florence; Crousore, Hannah; Baiden, Kaitlynn M. P.; Dwyer, Patrick; Williams, Zachary J.; Wang, Mian (January 2024). "A qualitative investigation into autistic adults' perspectives on intervention goals for autistic children". Neurodiversity. 2. doi:10.1177/27546330241266718.
  19. ^ Zhuang, Sici; Tan, Diana Weiting; Reddrop, Susan; Dean, Lydia; Maybery, Murray; Magiati, Iliana (November 2023). "Psychosocial factors associated with camouflaging in autistic people and its relationship with mental health and well-being: A mixed methods systematic review". Clinical Psychology Review. 105: 102335. doi:10.1016/j.cpr.2023.102335. PMID 37741059.
  20. ^ Klein, Jessica; Krahn, Rachel; Howe, Stephanie; Lewis, Jessi; McMorris, Carly; Macoun, Sarah (7 October 2024). "A systematic review of social camouflaging in autistic adults and youth: Implications and theory". Development and Psychopathology: 1–15. doi:10.1017/S0954579424001159. PMID 39370528.
  21. ^ Khudiakova, Valeria; Russell, Emmeline; Sowden-Carvalho, Sophie; Surtees, Andrew D.R. (October 2024). "A systematic review and meta-analysis of mental health outcomes associated with camouflaging in autistic people". Research in Autism Spectrum Disorders. 118: 102492. doi:10.1016/j.rasd.2024.102492.
  22. ^ Anderson, Laura K (April 2023). "Autistic experiences of applied behavior analysis". Autism. 27 (3): 737–750. doi:10.1177/13623613221118216. PMID 35999706.
  23. ^ McGill, Owen; Robinson, Anna (26 October 2021). "'Recalling hidden harms': autistic experiences of childhood applied behavioural analysis (ABA)" (PDF). Advances in Autism. 7 (4): 269–282. doi:10.1108/aia-04-2020-0025.
  24. ^ McCormack, Lynne; Wong, Sze Wing; Campbell, Linda E. (September 2023). "'If I don't Do It, I'm Out of Rhythm and I Can't Focus As Well': Positive and Negative Adult Interpretations of Therapies Aimed at 'Fixing' Their Restricted and Repetitive Behaviours in Childhood". Journal of Autism and Developmental Disorders. 53 (9): 3435–3448. doi:10.1007/s10803-022-05644-6. PMC 10465631. PMID 35781855.
  25. ^ Jaarsma, Pier; Welin, Stellan (March 2012). "Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement". Health Care Analysis. 20 (1): 20–30. doi:10.1007/s10728-011-0169-9. PMID 21311979.

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