Disease or patient registries are collections of secondary data related to patients with a specific diagnosis, condition, or procedure, and they play an important role in post marketing surveillance of pharmaceuticals.[1] Registries are different from indexes in that they contain more extensive data.
In its simplest form, a disease registry could consist of a collection of paper cards kept inside "a shoe box" by an individual physician. Most frequently registries vary in sophistication from simple spreadsheets that only can be accessed by a small group of physicians to very complex databases that are accessed online across multiple institutions.[2]
They can provide health providers (or even patients) with reminders to check certain tests in order to reach certain quality goals.
- ^ McNeil, JJ; Piccenna, L; Ronaldson, K; et al. (2010). "The Value of Patient-Centered Registries in Phase IV Drug Surveillance". Pharm Med. 24 (5): 281–288. doi:10.1007/bf03256826. S2CID 19091146. Archived from the original on 2012-07-07. Retrieved 2011-06-17.
- ^ "ACP Observer, September 2005 - Patient registries: a key step to quality improvement". Archived from the original on 2012-07-31.